This research is on neonatal encephalopathy and developing a “Core Outcome Set” of the most important outcomes that parents, healthcare providers and researchers think are important to asses to see if the treatment is working.

For this part of the research study, we will be asking parents or carers of infants, in Ireland and Australia, who were diagnosed with neonatal encephalopathy and received treatment (often cooling therapy), what they think is important to assess in studies looking at treatments for neonatal encephalopathy or HIE.

You can take part in this study if you are over 18 years of age and are a parent or other family member who care, or have cared for, an infant who has been diagnosed with and received treatment for neonatal encephalopathy.

Available for download here are:

  • The Participant Information Leaflet which goes into moredetail on the research we are doing and what would be involved if you decide to participate.
  • The Consent Form that we ​ask all parents/ carers to sign before taking part in the study.

Please let us know if you are interested in taking part in this research by sending an email to Fiona at



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